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2019 HealthMeasures User Conference

Turning Insights into Action

Conference: June 5-6, 2019
Optional Pre-Conference Learning Day: June 4, 2019

Prentice Women's Hospital Conference Center 3rd floor
250 E. Superior Street Chicago, IL

The annual HealthMeasures User Conference is an educational and networking event for clinicians, researchers, and others using PROMIS®, Neuro-QoL, ASCQ-Me®, or NIH Toolbox®.

The 2019 HealthMeasures User Conference (June 4-6, 2019 in Chicago), will feature a day of optional pre-conference educational sessions, followed by 2 days of interactive conference programming to include:

  • Case studies and presentations showing how HealthMeasures are being used in clinical care, clinical research, population health studies, and quality assessment
  • Peer-to-peer learning and ideas for addressing implementation challenges
  • Opportunities for networking and collaboration

See the 2019 HealthMeasures User Conference at a Glance>> The complete program and confirmed schedule will be published in April 2019.

See the 2017 HealthMeasures User Conference highlights and program>>


Registration is open through May 28>>

  • The $300 registration fee for the 2-day conference (June 5-6) includes access to all conference plenary and breakout sessions (including an evening poster reception), as well as continental breakfast, lunch, and break refreshments on both days. A limited number of complimentary, 30-minute individual consultations with measurement science experts will also available during the conference (advance appointments required).
  • Please Note:  Registration options for the optional Pre-Conference Learning Day (June 4) include:
    • Full-day training session:  Choose between Introduction to PROMIS, Neuro-QoL, and ASCQ-Me or NIH Toolbox iPad App Training ($250 fee includes lunch and all session materials)
    • Half-day workshop:  Implementing Patient-Reported Outcomes in Clinical Practice ($125 fee includes lunch and all session materials)


Hotels and Ground Transportation

Due to high summer demand, conference attendees should make hotel accommodations early.  We have been informed that a limited number of rooms at 3 area hotels are available at discounted rates. To receive these rates, please contact the hotels directly using the information below and mention you are attending the HealthMeasures User Conference hosted by Northwestern University. 

Hyatt Centric Chicago Magnificent Mile:  Click here to reserve online or call (877) 803-7534 and mention the code G-HEAL.

Warwick Allerton Hotel:  Click here to reserve online or call (312) 274-6413 and ask for Jessica Green (Business Travel Manager)

DoubleTree Magnificent Mile:  Click here to reserve online or call (312) 787-6100 and mention Corporate ID 560005858 (Northwestern University).

Additional information about nearby hotels and ground transportation is available here>>

Registration is now open for the optional Pre-Conference Learning Day (June 4, 2019). This event, which is appropriate for both new and experienced HealthMeasures users, will feature 2 full-day training sessions and 1 half-day workshop.


Full-Day Training Options: June 4th from 8:30 am – 5:00 pm (lunch provided)

Introduction to PROMIS, Neuro-QoL and ASCQ-Me
This 1-day training is appropriate for researchers and clinicians who are new to HealthMeasures, patient-reported outcomes (PROs), item response theory (IRT), and integrating such measures into research and clinical workflows. Participants will receive an overview of three measurement systems (PROMIS, Neuro-QoL and ASCQ-Me) along with an introduction to IRT and computer adaptive tests (CAT). Additional topics will include administration options, the HealthMeasures Scoring Service, free tools and resources available at HealthMeaures.net, and practical considerations for implementation in clinical practice settings.

NIH Toolbox iPad App Training

A 1-day, intensive session in which participants will learn how to administer NIH Toolbox performance measures using the NIH Toolbox iPad app. Sessions will teach the basic knowledge and skills to familiarize participants with the administration of the NIH Toolbox iPad app, self- and proxy-report measures of emotional function, and the performance-based tests of cognitive, motor, and sensory function. For this training, an emphasis will be placed on the administration of cognitive tests. Participants are required to bring their own iPad with the NIH Toolbox app installed.

To get the NIH Toolbox iPad app, visit the App Store on your iPad or click here>>


Half-Day Workshop  - June 4th from 1:30 pm – 5:00 pm (lunch provided)

Implementing Patient-Reported Outcomes in Clinical Practice

In this afternoon workshop 4 healthcare organizations—ranging from academic medical centers to private clinics to low-resource settings—will describe how they successfully applied principles from implementation science and organizational transformation to integrate patient-reported outcomes measures into clinical practice. Presenters from the University of Pittsburgh Medical Center, the University of Rochester, Northwestern University and the Instituto Chuguisaqueño de Oncología (Bolivia), and the University of Washington will address workflow change, provider and staff education, data collection, electronic medical record (EMR) integration, and use of PRO data in shared decision-making.

The 2019 HealthMeasures User Conference Call for Proposals is closed.

Below is information about the Call for Proposals.

The 2019 HealthMeasures User Conference Planning Committee invites you to submit a presentation abstract or workshop proposal featuring one or more of the HealthMeasures systems (PROMIS, Neuro-QoL, ASCQ-Me, or NIH Toolbox). Submissions should address questions of interest to HealthMeasures users, including (but not limited to):

  • In what novel applications and diverse settings are you using HealthMeasures?
  • What implementation challenges did you experience, and how did you address them?
  • How do you integrate HealthMeasures with clinic workflows and technologies?
  • What advances are occurring in measurement science and assessment technology?

Presentation Format Options:
Workshops: Interactive pre-conference workshops ranging in length from 1.5 to 3 hours and designed to build skills and knowledge. Sample topics include (but are not limited to): data visualization; measure linking; integration of measures with electronic health records and clinic workflows; use of HealthMeasures with specific populations.

Oral Presentations:

  • 20-minute podium presentations
  • 15-minute ‘works in progress’ presentations (5-minute presentations on new ideas or formative research, followed by 10-minutes for audience questions and feedback).

Poster Presentations describing applications or research related to HealthMeasures.

We thank the following organizations for their contributions as 2019 HealthMeasures User Conference sponsors:

2019 HMUC Sponsor Logo AbbVie OBERD BrightOutcome Pfizer FACIT 042619