Publishing PROMIS® Results

Please use this Publication Checklist when writing about PROMIS measures in publications and presentations. Checklist categories include measure details, administration, scoring, and reporting.  Access the Publication Checklist here>>

  • The first mention of PROMIS should include its full name: “Patient Reported Outcomes Measurement Information System (PROMIS).” Subsequent sentences should use “PROMIS.” 
  • Report the official measure name. The measure name includes the following components:
    • Measure type (i.e., short form, computer adaptive test (CAT), profile, scale, uncalibrated item pool)
      • Note that in some data collection systems, measure are labeled as “item banks.” If the item bank was administered as a computer adaptive test, please refer to the measure as a CAT.
    • For short forms, the number of items and letter designation if it exists (e.g., Depression 4a)
  • Version number (e.g., v1.2)
  • Full domain name (e.g., Ability to Participate in Social Roles and Activities). You can find the full domain name on the List of PROMIS Measures pages.
  • Include “Pediatric” or “Parent Proxy” if appropriate
  • Examples
    • PROMIS Short Form v1.0 – Pain Interference 6b
    • PROMIS Pediatric CAT v1.0 – Fatigue
    • PROMIS-29 Profile v2.0
    • PROMIS Scale v1.2 - Global Health
  • This information can be found in each measure’s scoring manual on the HealthMeasures website here.

Use T-scores

  • All PROMIS scores should be presented as T-scores. The T-score is the standardized score with a mean of 50 and standard deviation of 10. Raw scores should only be reported for uncalibrated items (i.e., item pools). Having T-scores in publications facilitates comparisons between studies.
    • Percentiles can be included as additional but not replacement information.
    • Higher scores indicate more of the concept being measured. Sometimes this is desirable (e.g., physical function) and sometimes this is undesirable (e.g., fatigue). Do not reverse the score (e.g., high always indicates bad).
      • We recommend utilizing graphs with two Y-axes when presenting symptoms (high scores are not desirable) and function (high scores are desirable) together. For example, here are PROMIS-29 T-scores:

double y axis graph for PROMIS

    • There are multiple ways to calculate PROMIS T-scores (e.g., HealthMeasures Scoring Service, Scoring Manual, automatic scoring in a data collection platform). Learn more about your options at Calculate Scores>>
  • Sometimes the syntax of a PROMIS item or measure was modified. Any modifications to the syntax including time frame, item text, and response options should be described.
  • PROMIS measures were developed to be completed by self-report (adult and pediatrics age 8+) or by parent proxy report. If another method was used (e.g., interview administered, proxy report for an adult), include a description.
  • If you would like to reprint a PROMIS measure in a publication, you must have written permission. All requests can be emailed to


For more information, see:
Hanmer, J., Jensen, R.E. & Rothrock, N. A reporting checklist for HealthMeasures’ patient-reported outcomes: ASCQ-Me, Neuro-QoL, NIH Toolbox, and PROMIS. J Patient Rep Outcomes 4, 21 (2020).