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Helpful Resources

Watch a 5-minute video in which Cleveland Clinic neurologist Deborah Miller, MD describes tools for quality-of-life measurement in multiple sclerosis.

Intro to Neuro-QoLTM

Neuro-QoL measures quantify the physical, mental, and social effects experienced by adults and children living with neurological conditions.

Adult Assessment

  • Neuro-QoL developed a set of health-related quality of life measures for use with adults who have a neurological condition or disorder. See the List of Adult Measures>>
  • Self-report measures can be completed by a proxy responder when necessary.  Learn more>>
  • Measures are available in Spanish and other languages. See the List of Available Translations>>
  • Neuro-QoL measures are available for free and can be administered in multiple ways. Learn how to obtain and administer Neuro-QoL measures>>
  • Neuro-QoL measures include specific symptoms, functions, and experiences of people with Huntington disease (HDQLIFE) and caregivers for people with traumatic brain injury (TBI-CareQOL).   Learn more>>

neuro qol adult framework 3.29.21 

Pediatric Assessment

 

neuro qol ped domain framework 3.29.21

Short Forms and Computer Adaptive Tests

Neuro-QoL offers two types of instruments.

  • Short Forms: fixed set of 5-10 items or questions for one domain
  • Computer Adaptive Tests (CATs): items are dynamically selected for administration from an item bank based upon the respondent’s previous answers. Usually 4-12 items with a high level of measurement precision. Learn more about CATs>> or try out a CAT>>

Neuro-QoL is Appropriate for Use Across a Range of Neurological Conditions

Neuro-QoL measures can be used in a range of adult and pediatric neurological conditions including but not limited to: stroke, multiple sclerosis, Parkinson’s disease, epilepsy, amyotrophic lateral sclerosis (ALS), traumatic brain injury (TBI), military deployment–related traumatic brain injury (MDR-TBI), spinal cord injury (SCI), and Huntington’s disease (HD).  The Neuro-QoL HDQLIFE measures are particularly suited for individuals with HD. The Neuro-QoL TBI-CareQOL measures were developed for caregivers for people with TBI, but may be useful for other caregivers as well.

Neuro-QoL measures can be administered alongside PROMIS® or NIH Toolbox® measures that assess other aspects of health and function.

Active Neuro-QoL Research

To learn more about Neuro-QoL, watch this 4-minute introductory video.

Neuro-QoL: A New Patient-Reported Outcome Measure for Neurology Research and Practice

 

HealthMeasures is the official information and distribution center for Neuro-QoL which was developed and evaluated with National Institutes of Health (NIH) funding.