Administration Guidelines during COVID-19 and Social Distancing
As part of COVID-19 guidelines and social distancing, the HealthMeasures and ASCQ-Me team acknowledge that recommended administration practices may not be possible. In cases where modifications are required to continue data collection (e.g., administration via phone interview), this is allowable at this time. We recommend that the required modification be documented and that each assessment that was done using a modified administration is “flagged” for subsequent analysis.  When shared devices are used, disinfection protocols must be followed.

ASCQ-Me® (Adult Sickle Cell Quality of Life Measurement Information System) is a patient-reported outcome measurement system that evaluates and monitors the physical, mental, and social well-being of adults with sickle cell disease (SCD). 

Why Use ASCQ-Me?

  • Developed and validated with state-of-the-science methods to be psychometrically sound

  • Designed to be comprehensive when used with PROMIS®

  • Created to be complementary with physiological measures of disease severity

  • Supports treatment planning as well as clinical and health services research


ASCQ-Me is a registered trademark of the U.S. Department of Health & Human Services (HHS).